[Air-L] Using social media to reduce stigma
Marco Campana
marcolists at gmail.com
Tue Mar 26 07:44:04 PDT 2013
Hi Bridianne,
The Centre for Addiction and Mental Health (CAMH) in Toronto has been doing
some work with social media. Here are some useful links:
Using Social Media as a Resource and Advocacy Tool for Clients/Patients -
webinar recording
http://knowledgex.camh.net/health_equity/immigrants_ethnoracial/Pages/Social_Media.aspx
http://camh.adobeconnect.com/p6kgxmxobex/
Defeat Denial campaign
http://www.camh.ca/en/hospital/about_camh/newsroom/socialmedia/defeat_denial_campaign/Pages/about_campaign.aspx
Mental Illness Awareness Week - engaging the public through social media
http://www.camh.ca/en/hospital/about_camh/newsroom/news_releases_media_advisories_and_backgrounders/archives/2009/Pages/miaw_2009.aspx
Using Social Media to Improve Healthcare Quality - report looks at how
CAMH and Providence Healthcare used tech/social media (PDF)
http://www.cfhi-fcass.ca/Libraries/Researcher_on_Call/SocialMedia.sflb.ashx
Marco
On Mon, Mar 25, 2013 at 1:02 AM, Bridianne Odea <
bridianne.odea at sydney.edu.au> wrote:
> Dear all,
>
> My research team and I are interested in designing a social media campaign
> to reduce the stigma surrounding mental illness. I have not been very
> successful in my search of existing campaigns, both within and beyond
> Australia. Is anyone aware of, or conducting their own research, in the
> areas of social media and stigma (whether it be for mental illness or any
> other health issue)? Any suggestions would be greatly appreciated.
>
> Bridi
>
> BRIDIANNE O’DEA PhD | Research Assistant | Thursday - Friday
> The Transitions Study
> Brain & Mind Research Institute
>
> THE UNIVERSITY OF SYDNEY
> Room 203, Level 2, Building M02G | 100 Mallett St Camperdown | NSW | 2050
> T +61 2 9114 4151 | M +61 423 366 563
> E bridianne.odea at sydney.edu.au | W sydney.edu.au/bmri
>
> CRICOS 00026A
> This email plus any attachments to it are confidential. Any unauthorised
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> delete it and any attachments.
>
> ________________________________________
> From: air-l-bounces at listserv.aoir.org [air-l-bounces at listserv.aoir.org]
> on behalf of air-l-request at listserv.aoir.org [
> air-l-request at listserv.aoir.org]
> Sent: Monday, 25 March 2013 9:00 AM
> To: air-l at listserv.aoir.org
> Subject: Air-L Digest, Vol 104, Issue 26
>
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> Today's Topics:
>
> 1. Possible adopters, Digital Media Ethics, 2nd edition?
> (Charles Ess)
> 2. CFP IJHCS Special Issue: Perspectives on participatory HCI
> research: Beginnings, middles and endings (John Vines)
> 3. Help recruiting and enrolling participants in Twitter study
> (Benjamin Gleason)
> 4. Re: Quantitative analysis of online pornography (Antoine Mazieres)
>
>
> ----------------------------------------------------------------------
>
> Message: 1
> Date: Sun, 24 Mar 2013 07:46:29 +0100
> From: Charles Ess <charles.ess at gmail.com>
> To: Air list <air-l at listserv.aoir.org>
> Subject: [Air-L] Possible adopters, Digital Media Ethics, 2nd edition?
> Message-ID: <CD745FD5.5C0DC%charles.ess at gmail.com>
> Content-Type: text/plain; charset="ISO-8859-1"
>
> Dear AoIR friends and colleagues,
>
> (with apologies in advance to any of you who experience this as a form of
> unwanted spam. My reason for sending this to the AoIR list is that the
> book
> and its revisions are so deeply indebted to AoIR colleagues, the work of
> the
> ethics committee, and conference presentations and discussions that AoIR
> seems to me the book's first and most natural home.)
>
> The second (substantially revised and thoroughly updated) edition of my
> book, Digital Media Ethics (Polity Press) will come out later this year,
> I'm
> very happy to say. I've appended the blurb at the end of this note.
>
> In the meantime, however, Polity would like me to develop a list of
> possible
> adopters of the book: the possible adopters will then be sent an inspection
> copy of the book for review.
>
> So: if you would like to be included in the list, please send me your
> indication of interest along with exact contact details - name, address,
> email address, and phone number - so that Polity can contact you as needed.
>
> (You can send these to either my gmail account or UiO account:
> <c.m.ess at media.uio.no>)
>
> Along these lines, if anyone has recommendations for journals that would be
> interested in reviewing the new book, I would very much appreciate that
> information as well.
>
> Thanks in advance, and best in the meantime,
> -charles
>
> Associate Professor in Media Studies
> Department of Media and Communication
>
> Director, Centre for Research on Media Innovations
> <http://www.hf.uio.no/imk/english/research/center/media-innovations/>
>
> University of Oslo
> P.O. Box 1093 Blindern
> NO-0317
> Oslo Norway
> email: c.m.ess at media.uio.no
>
> The blurb:
> The original edition of this accessible and interdisciplinary textbook was
> the first to consider the ethical issues of digital media from a global
> perspective, introducing ethical theories from multiple cultures. This
> second edition has been thoroughly updated to cover current research and
> scholarship, and recent developments and technological changes,
> particularly
> the dominance of Internet access via mobile devices. The new edition also
> benefits from extensively updated case-studies and pedagogical material,
> incorporating more recent scholarship as well as examples of ?watershed?
> events and developments, including privacy policy changes on Facebook,
> Google+, and others, in relation to on-going changes in privacy law in the
> U.S., the E.U., and Asia.
> New for the second edition are sections on friendship online,
> democratization, and ?citizen journalism? and its implications for
> traditional journalistic ethics. With a significantly updated section on
> the
> ?ethical toolkit?, this book will also introduce students to prevailing
> ethical theories and illustrate how they are applied to central issues in
> digital media ethics. Topics covered include privacy, copyright,
> pornography
> and violence, and the ethics of cross-cultural communication online.
> Digital Media Ethics is student- and classroom-friendly: each topic and
> theory is interwoven throughout the volume with detailed sets of questions
> that foster careful reflection upon, writing about, and discussion of these
> issues and their possible resolutions. Each chapter includes additional
> resources and suggestions for further research and writing.
>
>
>
>
> ------------------------------
>
> Message: 2
> Date: Sun, 24 Mar 2013 10:48:47 +0000
> From: John Vines <john.vines at newcastle.ac.uk>
> To: "air-l at listserv.aoir.org" <air-l at listserv.aoir.org>
> Subject: [Air-L] CFP IJHCS Special Issue: Perspectives on
> participatory HCI research: Beginnings, middles and endings
> Message-ID: <CD748A89.1B53A%john.vines at ncl.ac.uk>
> Content-Type: text/plain; charset="Windows-1252"
>
> Apologies for cross-posting
>
> **************************
> Call for Papers: Special Issue of the Int. Journal of Human-Computer
> Studies
>
> Perspectives on participatory HCI research: Beginnings, middles and endings
>
> http://di.ncl.ac.uk/participation/special-issue/
>
> **************************
> Scope
> **************************
> Participation is a research area of sustained interest to the HCI
> community. Traditionally, the term has been used to suggest a democratized
> approach to the design of technology that calls for end-user involvement in
> the design process. This may vary from researchers inviting specific users
> or stakeholders to participate in design workshops, through to long term
> engagements with communities to define research questions and study
> deployments of new technologies. As HCI is an interdisciplinary field,
> however, there are multiple understandings of what participation in
> research might mean, from subjects and disciplines such as social science,
> participatory and performance arts, international development, and action
> research. Beyond these influences, there is also increased pressure from
> funding bodies and public institutions to involve a wider spectrum of the
> public in academic research. The convergence of these factors has drawn
> attention to the potential benefits and challenges
> , both theoretical and practical of involving users and the public in HCI
> research.
>
> While user, citizen or stakeholder participation in design processes can
> offer great insight into the applicability of technological interventions
> in certain contexts, the HCI community would benefit from critically
> reflecting on how participation is planned, managed, and sustained. The
> mundane yet still significant details of how participatory HCI research is
> performed are rarely documented and discussed by the community. The coming
> together of multiple perspectives from different disciplines ? some of
> which have existing frameworks, some debate the very notion of
> participation ? provides an opportunity for HCI researchers to reflect
> critically on how people are involved in design processes. Specifically, we
> call attention to the following three phases of performing participatory
> HCI research:
>
> How we begin:
> How do researchers establish relationships with communities, participants,
> or users and stakeholders prior to commencing participatory research? Who
> here determines the research context and the setting it takes place in, or
> what research questions are formed? Furthermore, what agendas, skills and
> assumptions do researchers bring to a participatory project? Why are
> certain participants selected or invited to take part over others?
>
> How we reflex and reflect:
> How do researchers reflect upon and manage the complicated processes of
> participation and engagement while working with groups or communities? How
> are researchers and participants given space to document and reflect upon
> the activities they perform and how does this inform the research or design
> process throughout? How do we understand our practice when busy doing it
> and can we develop strategies to elicit generative reflections on practice
> as it is enacted? Furthermore, is it possible to document participatory
> work along the way without skewing the process itself?
>
> How we end:
> How do researchers determine whether deployments or interventions should
> be sustained beyond the formal completion of research, and what are the
> practical challenges of leaving a legacy of a participatory project? Is
> sustainability or legacy always positive outcome of participatory research,
> and are there ways of empirically understanding transformations within a
> context beyond the uptake or success of a specific technology or
> intervention?
>
> **************************
> Topics
> **************************
> This special issue aims to present a set of high quality, thought
> provoking, original research articles that address one or more of these
> stages through topics including, but not limited to:
> -- Empirical studies collaborating with organizations and communities in
> the design or evaluation of new technologies.
> -- Studies of participatory HCI that target specific populations or
> communities, such as older people, young people, activist groups,
> charities, rural communities, among others.
> -- Theoretical and conceptual frameworks that unpack the questions and
> related problems of participation as a process.
> -- Critical reflections on existing and historical examples of
> participation in HCI.
> -- Strategies for documenting and eliciting reflection from both
> researchers and participants engaged in research.
> -- Considerations of the ethical, moral and political implications of
> designing technologies with communities of users and stakeholders.
> -- Interdisciplinary perspectives on participatory HCI research.
> -- Case studies discussing experiences of beginning, reflecting on or
> sustaining participatory HCI research.
>
> It is anticipated that submissions will tackle at least one stage of
> participatory research/design processes in use, as described above, and
> that accepted papers will comprise examples from each phase. Papers
> addressing theoretical issues will only be considered where the
> contribution is exceptional.
>
> **************************
> Paper submission
> **************************
> Authors are requested to contact the guest editors (email:
> participation.di at gmail.com<mailto:participation.di at gmail.com>) prior to
> making a submission by July 31st 2013 to inform them of their plans to
> submit to the special issue. All submissions should be made to the IJHCS
> submission system at http://ees.elsevier.com/ijhcs selecting "SI:
> participatory HCI" as the Article Type. Full manuscripts should be
> submitted according to the IJHCS Guide for authors and will be blind
> refereed.
>
> Articles must be based on original research, although extended versions of
> published conference papers may be acceptable if they contain at least 50%
> new material. All manuscripts should be submitted online. The IJHCS Guide
> for authors and online submission is available at
> http://ees.elsevier.com/ijhcs.
>
> **************************
> Key dates
> **************************
> Email guest editors prior to submission: 31st July 2013
> Paper due date: 31st August 2013
> Review completion date: 15th November 2013 (Notification of 1st
> review)
> Re-Submission by: 17th January 2014
> Final Acceptance: 21st February 2014 (Notification of 2nd review)
> Final Version due: 7th April 2014
>
> **************************
> Guest Editors
> **************************
> John Vines, Newcastle University (United Kingdom)
> Rachel Clarke, Newcastle University (United Kingdom)
> Ann Light, Northumbria University (United Kingdom)
> Peter Wright, Newcastle University (United Kingdom)
>
>
>
> ------------------------------
>
> Message: 3
> Date: Sun, 24 Mar 2013 09:41:37 -0400
> From: Benjamin Gleason <horns2k at gmail.com>
> To: air-l at listserv.aoir.org
> Subject: [Air-L] Help recruiting and enrolling participants in Twitter
> study
> Message-ID:
> <CAN16u+v-X0t7Dv7D1HRn0vVmPmyGEg3hAG=
> Sv6JXX8aehztJmg at mail.gmail.com>
> Content-Type: text/plain; charset=ISO-8859-1
>
> Hi there. My name is Benjamin Gleason and I'm a 2nd year PhD student at
> Michigan State University. I'm currently doing a study that explores the
> digital literacy practices and identity performances of high school aged
> Twitter users. The study design is composed of two stages-- the first will
> be a discourse analysis of tweets and the second will be semi-structured
> interview about their Twitter practices. I've received IRB approval for my
> study and am ready to recruit and enroll participants, who I've been
> following on Twitter for the past 4-6 weeks or so.
>
> Anecdotally, I've seen a lot of interesting identity-work happening and
> would like to get the young people I've been following to participate in
> the study. I invited a few of the participants to join the study, but the
> response has been limited.
>
> I was hoping to find participants through Twitter who may be interested in
> participating, but that doesn't seem to be happening.
>
> I'm wondering if anyone has suggestions for how to recruit participants
> (aged 15-18) to join my study. The requirements of the study *seem* pretty
> minimal-- only one (or maybe two) interviews about their Twitter use. But
> I'm having a hard time getting young people to participate. Your help is
> appreciated.
>
> Thanks and have a great day :)
>
> --
> p: 415-516-6240
>
> https://sites.google.com/site/bwgleason (research)
> http://www.progroup.us <http://www.prospectusgroup.us> (consulting)
>
> "For every single idea of a judicious and reasonable nature which offers
> itself to us, what hosts of frivilous, bizarre, and absurd ideas cross our
> mind."
> [Paul Soriau, Theory of Invention, 1881]
>
>
> ------------------------------
>
> Message: 4
> Date: Sun, 24 Mar 2013 19:45:03 +0100
> From: Antoine Mazieres <antoine.mazieres at gmail.com>
> To: "air-l at listserv.aoir.org" <air-l at listserv.aoir.org>
> Subject: Re: [Air-L] Quantitative analysis of online pornography
> Message-ID:
> <
> CAH+6s9dKuMpMsojfGo0jbKr9JLcJqtCFzF2qaibotEZ5U+AgGw at mail.gmail.com>
> Content-Type: text/plain; charset=ISO-8859-1
>
> http://www.pornmd.com/sex-search
>
> Very nice data ! never saw it before...
> the presence of "rape" in the top ten (india for instance) is quite
> frightening...
>
> This data is bound to server-side information (pornhub - #3 in the world).
>
> Best,
> Antoine
>
>
> On Sun, Mar 10, 2013 at 11:45 AM, Antoine Mazieres <
> antoine.mazieres at gmail.com> wrote:
>
> > Dear all,
> >
> > Thank you very much for all your answers. I'll get back to you as soon as
> > I went through all this references.
> > Also, I will let you know about the dataset I have in mind.
> >
> > Thanks again,
> > Antoine
> >
> >
> > On Fri, Mar 1, 2013 at 4:16 PM, Antoine Mazieres <
> > antoine.mazieres at gmail.com> wrote:
> >
> >> Dear IRs,
> >>
> >> I am looking at available data of online pornography and looked at
> >> available studies made out of them.
> >>
> >> I'm very surprised to mainly only find studies on impact/effect of
> >> pornography on humans with almost none study on
> topology/dynamics/evolution
> >> of the object itself.
> >>
> >> Does some of you have some references in mind that dig in that
> direction ?
> >>
> >> (If I manage to arrange a dataset out of available data on public
> >> website, I would be glad to share it, let me know if you're interested.)
> >>
> >> Thanks for your help,
> >> All best,
> >> Antoine
> >> http://mazier.es/
> >>
> >
> >
>
>
> ------------------------------
>
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