[Air-L] Literature on Networks and Online Health Communities

Wed Oct 17 11:31:43 PDT 2018

Thank you Yuri and Mette!

These are spot on.

On October 17, 2018 at 4:54:06 AM, Юрий Рыков (rykyur at gmail.com<mailto:rykyur at gmail.com>) wrote:

Hi Benjamin,

There is my list of references on the topic (in alphabetical order):

Carron-Arthur, B., Cunningham, J. A., & Griffiths, K. M. (2014). Describing the distribution of engagement in an Internet support group by post frequency: A comparison of the 90-9-1 Principle and Zipf’s Law. Internet Interventions, 1(4), 165–168. https://doi.org/10.1016/j.invent.2014.09.003
Carron-Arthur, B., Reynolds, J., Bennett, K., Bennett, A., Cunningham, J. A., & Griffiths, K. M. (2016). Community Structure of a Mental Health Internet Support Group: Modularity in User Thread Participation. JMIR Mental Health, 3(2), e20. https://doi.org/10.2196/mental.4961
Centola, D. (2010). The Spread of Behavior in an Online Social Network Experiment. Science, 329(5996), 1194–1197. https://doi.org/10.1126/science.1185231
Chen, L., & Shi, J. (2015). Social support exchanges in a social media community for people living with HIV/AIDS in China. AIDS Care, 27(6), 693–696. https://doi.org/10.1080/09540121.2014.991678
Chomutare, T., Årsand, E., Fernandez-Luque, L., Lauritzen, J., & Hartvigsen, G. (2013). Inferring Community Structure in Healthcare Forums: An Empirical Study. Methods of Information in Medicine, 52(2), 160–167. https://doi.org/10.3414/ME12-02-0003
Chung, J. E. (2014). Social Networking in Online Support Groups for Health: How Online Social Networking Benefits Patients. Journal of Health Communication, 19(6), 639–659. https://doi.org/10.1080/10810730.2012.757396
Cobb, N. K., Graham, A. L., & Abrams, D. B. (2010). Social Network Structure of a Large Online Community for Smoking Cessation. American Journal of Public Health, 100(7), 1282–1289.
Coursaris, C. K., & Liu, M. (2009). An analysis of social support exchanges in online HIV/AIDS self-help groups. Computers in Human Behavior, 25(4), 911–918. https://doi.org/10.1016/j.chb.2009.03.006
Graham, A. L., Zhao, K., Papandonatos, G. D., Erar, B., Wang, X., Amato, M. S., … Pearson, J. L. (2017). A prospective examination of online social network dynamics and smoking cessation. PLOS ONE, 12(8), e0183655. https://doi.org/10.1371/journal.pone.0183655
Gruzd, A., & Haythornthwaite, C. (2013). Enabling Community Through Social Media. Journal of Medical Internet Research, 15(10), e248. https://doi.org/10.2196/jmir.2796
Himelboim, I., & Han, J. Y. (2014). Cancer Talk on Twitter: Community Structure and Information Sources in Breast and Prostate Cancer Social Networks. Journal of Health Communication, 19(2), 210–225. https://doi.org/10.1080/10810730.2013.811321
Maloney-Krichmar, D., & Preece, J. (2005). A Multilevel Analysis of Sociability, Usability, and Community Dynamics in an Online Health Community. ACM Trans. Comput.-Hum. Interact., 12(2), 201–232. https://doi.org/10.1145/1067860.1067864
Meylakhs, P., Rykov, Y., Koltsova, O., & Koltsov, S. (2014). An AIDS-Denialist Online Community on a Russian Social Networking Service: Patterns of Interactions With Newcomers and Rhetorical Strategies of Persuasion. Journal of Medical Internet Research, 16(11), e261. https://doi.org/10.2196/jmir.3338
Murthy, D., Gross, A., & Oliveira, D. (2011). Understanding Cancer-Based Networks in Twitter Using Social Network Analysis. In 2011 Fifth IEEE International Conference on Semantic Computing (ICSC) (pp. 559–566). https://doi.org/10.1109/ICSC.2011.51
Myneni, S., Cobb, N. K., & Cohen, T. (2017). Content-specific network analysis of peer-to-peer communication in an online community for smoking cessation. AMIA Annual Symposium Proceedings, 2016, 934–943.
Myneni, S., Cobb, N., & Cohen, T. (2016). In Pursuit of Theoretical Ground in Behavior Change Support Systems: Analysis of Peer-to-Peer Communication in a Health-Related Online Community. Journal of Medical Internet Research, 18(2), e28. https://doi.org/10.2196/jmir.4671
Myneni, S., Fujimoto, K., Cobb, N., & Cohen, T. (2015). Content-Driven Analysis of an Online Community for Smoking Cessation: Integration of Qualitative Techniques, Automated Text Analysis, and Affiliation Networks. American Journal of Public Health, 105(6), 1206–1212. https://doi.org/10.2105/AJPH.2014.302464
Rykov, Y. G., Meylakhs, P. A., & Sinyavskaya, Y. E. (2017). Network Structure of an AIDS-Denialist Online Community: Identifying Core Members and the Risk Group. American Behavioral Scientist, 61(7), 688–706. https://doi.org/10.1177/0002764217717565
Stewart, S. A., & Abidi, S. S. R. (2012). Applying Social Network Analysis to Understand the Knowledge Sharing Behaviour of Practitioners in a Clinical Online Discussion Forum. Journal of Medical Internet Research, 14(6), e170. https://doi.org/10.2196/jmir.1982
Tang, X., & Yang, C. C. (2010). Identifing influential users in an online healthcare social network. In 2010 IEEE International Conference on Intelligence and Security Informatics (ISI) (pp. 43–48). https://doi.org/10.1109/ISI.2010.5484779
van Mierlo, T. (2014). The 1% Rule in Four Digital Health Social Networks: An Observational Study. Journal of Medical Internet Research, 16(2), e33. https://doi.org/10.2196/jmir.2966
Wang, X., Shi, J., Chen, L., & Peng, T.-Q. (2016). An Examination of Users’ Influence in Online HIV/AIDS Communities. Cyberpsychology, Behavior, and Social Networking, 19(5), 314–320. https://doi.org/10.1089/cyber.2015.0539
Zhao, K., Greer, G. E., Yen, J., Mitra, P., & Portier, K. (2014). Leader identification in an online health community for cancer survivors: a social network-based classification approach. Information Systems and E-Business Management, 13(4), 629–645. https://doi.org/10.1007/s10257-014-0260-5
Zhao, K., Wang, X., Cha, S., Cohn, A. M., Papandonatos, G. D., Amato, M. S., … Graham, A. L. (2016). A Multirelational Social Network Analysis of an Online Health Community for Smoking Cessation. Journal of Medical Internet Research, 18(8), e233. https://doi.org/10.2196/jmir.5985

Hope it would be useful for your work.

Best regards,
Yuri

On Wed, 17 Oct 2018 at 01:28, Sugar, Benjamin N <bsugar at gatech.edu<mailto:bsugar at gatech.edu>> wrote:
Hi everyone,

There is a fair amount of work on interactions in these communities between individuals and the group as a collection of individuals.  There is also a lot of work on networks and expertise communities (e.g. Q&A, wikipedia, open source software lists), but as some of the aforementioned work points out, expertise in OHC’s are only part of the dynamics.

Any recommendations on papers that address networks and online health communities?

Benjamin
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Yuri Rykov
PhD, Research Fellow at Centre for Population Health Sciences
LKC Medicine, Nanyang Technological University