[Air-L] IRB and social media
eliz1679 at uwm.edu
Tue Sep 27 07:51:54 PDT 2011
From the regulatory side, but perhaps useful to bring to your IRBs attention--the Office for Human Research Protections has guidance around the use of social media specifically for clinical trials recruitment at http://www.hhs.gov/ohrp/policy/clinicaltrials.html
I agree with Monica that asking for permissions from list owners is good practice and usually is not difficult to attain. (ANd I highly recommend Monica's article in IJIRE.)
Also, having a site moderator or leader post a "sticky" or other note announcing the study on the top of a forum or on a wall, etc, is good entrance and usually IRBs are fine with that approach.
Elizabeth Buchanan, Ph.D.
Director, Center for Applied Ethics
University of Wisconsin-Stout
PO Box 790
Menomonie, Wisconsin, USA
buchanane at uwstout.edu
Internet Research Ethics Commons
(NSF Project # 0924604)
elizabeth at internetresearchethics.org
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