[Air-L] Literature on Facebook groups on DTC genetic tests

[Serena Ciranna]

Thank very much for your answer.
Yes, I know their work and had the chance to meet the authors of the two
studies you mentioned at the Institute for Society and Genetics at UCLA.
Besides those very interesting works, I have found very little research
focused on these Facebook groups.
More specifically, I am looking for:
- more studies on online identity construction through the sharing of
genetic tests' results
- existing data about the extent of the phenomenon of sharing and
discussing the results of genetic tests online (how many groups/users,
etc.). For instance what is the ratio of the number of individuals who have
taken the test and those who then shared it on social media?

Thank you!
Best regards,
Serena







On Mon, Mar 18, 2019 at 4:07 PM Tarleton L. Gillespie <tlg28 at cornell.edu>
wrote:

> Hopefully you know Joan Donovan's work?
> https://osf.io/preprints/socarxiv/7f9bc/
> https://scholarspace.manoa.hawaii.edu/bitstream/10125/50105/1/paper0218.pdf
>
>
> On 3/18/19, 4:26 AM, "Air-L on behalf of Serena Ciranna" <
> air-l-bounces at listserv.aoir.org on behalf of serenaciranna at gmail.com>
> wrote:
>
>     Hi everyone,
>
>     I am studying the case of the sharing of of DTC genetic tests' results
>     (from 23andme, Ancestry.com etc.)online, in particular on dedicated
>     Facebook groups (such as  "Ancestry DNA matching
>     <https://www.facebook.com/groups/407494112747727/> or others).
>
>     Do you have any recommendations of relevant literature, theoretical and
>     empirical research on these Facebook groups or, more broadly on the
> topic
>     of sharing genetic tests' results on social media?
>
>     Your suggestions will be much appreciated !
>
>     Best regards,
>     Serena
>
>     --
>
>     Serena Ciranna
>
>     PhD student, Institut Jean-Nicod, EHESS, Paris
>
>     Visiting researcher at EPIDAPO, Institute for Society and Genetics,
> UCLA
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>

-- 

Serena Ciranna

PhD student, Institut Jean-Nicod, EHESS, Paris

Visiting researcher at EPIDAPO, Institute for Society and Genetics, UCLA