[Air-L] Literature on Facebook groups on DTC genetic tests

[Glatt,ZA (pgr)]

Hi Serena,


I can't help you on the question of academic literature on the sharing of genetic testing results on social media, but I am very familiar with this genre of content on YouTube and would be happy to point you in the direction of some videos if that would be of interest to you?


In particular, I know that BuzzFeed have produced a lot of these sorts of videos and have had great success with them, for example:


- 'The Try Guys Take An Ancestry DNA Test' (15.6 million views) https://www.youtube.com/watch?v=N06g2kc1Dxo

- 'We Took A DNA Test • The Test Friends' (12.6 million views) https://www.youtube.com/watch?v=BiNNUeMNcVw

- 'Ethnically Ambiguous People Take A DNA Test' (3.7 million views - and what a title!) https://www.youtube.com/watch?v=5171eGo13hs


This genre of video has become a prevalent trend on the platform in the last 2 years or so, with many people still replicating the format. As these videos are so popular on the platform (much bigger than the 77,000 members of the facebook group you highlighted), I would think they might be an important piece in the puzzle of a study about ancestry and social media?


Please feel free to get in touch!


Best,

Zoe

________________________

Zoë Glatt

www.zoeglatt.com<http://www.zoeglatt.com/>

ESRC PhD Researcher in Media & Communications

London School of Economics and Political Science (LSE)

Managing Editor: Communication, Culture & Critique

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<http://www.lse.ac.uk/media-and-communications/people/phd-researchers/zoe-glatt>

________________________________
From: Air-L <air-l-bounces at listserv.aoir.org> on behalf of Serena Ciranna <serenaciranna at gmail.com>
Sent: 18 March 2019 15:30:18
To: Tarleton L. Gillespie
Cc: List Aoir
Subject: Re: [Air-L] Literature on Facebook groups on DTC genetic tests

Thank very much for your answer.
Yes, I know their work and had the chance to meet the authors of the two
studies you mentioned at the Institute for Society and Genetics at UCLA.
Besides those very interesting works, I have found very little research
focused on these Facebook groups.
More specifically, I am looking for:
- more studies on online identity construction through the sharing of
genetic tests' results
- existing data about the extent of the phenomenon of sharing and
discussing the results of genetic tests online (how many groups/users,
etc.). For instance what is the ratio of the number of individuals who have
taken the test and those who then shared it on social media?

Thank you!
Best regards,
Serena







On Mon, Mar 18, 2019 at 4:07 PM Tarleton L. Gillespie <tlg28 at cornell.edu>
wrote:

> Hopefully you know Joan Donovan's work?
> https://osf.io/preprints/socarxiv/7f9bc/
> https://scholarspace.manoa.hawaii.edu/bitstream/10125/50105/1/paper0218.pdf
>
>
> On 3/18/19, 4:26 AM, "Air-L on behalf of Serena Ciranna" <
> air-l-bounces at listserv.aoir.org on behalf of serenaciranna at gmail.com>
> wrote:
>
>     Hi everyone,
>
>     I am studying the case of the sharing of of DTC genetic tests' results
>     (from 23andme, Ancestry.com etc.)online, in particular on dedicated
>     Facebook groups (such as  "Ancestry DNA matching
>     <https://www.facebook.com/groups/407494112747727/> or others).
>
>     Do you have any recommendations of relevant literature, theoretical and
>     empirical research on these Facebook groups or, more broadly on the
> topic
>     of sharing genetic tests' results on social media?
>
>     Your suggestions will be much appreciated !
>
>     Best regards,
>     Serena
>
>     --
>
>     Serena Ciranna
>
>     PhD student, Institut Jean-Nicod, EHESS, Paris
>
>     Visiting researcher at EPIDAPO, Institute for Society and Genetics,
> UCLA
>     _______________________________________________
>     The Air-L at listserv.aoir.org mailing list
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>     http://www.aoir.org/
>
>
>

--

Serena Ciranna

PhD student, Institut Jean-Nicod, EHESS, Paris

Visiting researcher at EPIDAPO, Institute for Society and Genetics, UCLA
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