[Air-L] Literature on Facebook groups on DTC genetic tests

Tue Mar 19 02:43:49 PDT 2019

Hi Zoe,

Thank you very much! Even if I will mainly focus on Facebook's groups, I am
more broadly interested in how narratives about genetics and personal
identity are developed on social media, so YouTube is a very good example
and as you said an important piece in the puzzle.
I have found an interesting article on this topic: Autobiologies on
YouTube: Narratives of Direct-to-Consumer Genetic Testing
<https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3996527/>.

Best,
Serena

On Mon, Mar 18, 2019 at 4:50 PM Glatt,ZA (pgr) <Z.A.Glatt at lse.ac.uk> wrote:

> Hi Serena,
>
>
> I can't help you on the question of academic literature on the sharing of
> genetic testing results on social media, but I am very familiar with this
> genre of content on YouTube and would be happy to point you in the
> direction of some videos if that would be of interest to you?
>
>
> In particular, I know that BuzzFeed have produced a lot of these sorts of
> videos and have had great success with them, for example:
>
>
> - 'The Try Guys Take An Ancestry DNA Test' (15.6 million views)
> https://www.youtube.com/watch?v=N06g2kc1Dxo
>
> - 'We Took A DNA Test • The Test Friends' (12.6 million views)
> https://www.youtube.com/watch?v=BiNNUeMNcVw
>
> - 'Ethnically Ambiguous People Take A DNA Test' (3.7 million views - and
> what a title!) https://www.youtube.com/watch?v=5171eGo13hs
>
> This genre of video has become a prevalent trend on the platform in the
> last 2 years or so, with many people still replicating the format. As these
> videos are so popular on the platform (much bigger than the 77,000 members
> of the facebook group you highlighted), I would think they might be an
> important piece in the puzzle of a study about ancestry and social media?
>
>
> Please feel free to get in touch!
>
>
> Best,
>
> Zoe
>
> *________________________*
>
> *Zoë Glatt*
>
> www.zoeglatt.com
>
> ESRC PhD Researcher in Media & Communications
>
> London School of Economics and Political Science (LSE)
>
> Managing Editor: Communication, Culture & Critique
>
> YouTube channel <https://www.youtube.com/user/Zedstergal> | Twitter
> <https://twitter.com/ZoeGlatt> | LSE bio
> <http://www.lse.ac.uk/media-and-communications/people/phd-researchers/zoe-glatt>
>
> <http://www.lse.ac.uk/media-and-communications/people/phd-researchers/zoe-glatt>
>
> ------------------------------
> *From:* Air-L <air-l-bounces at listserv.aoir.org> on behalf of Serena
> Ciranna <serenaciranna at gmail.com>
> *Sent:* 18 March 2019 15:30:18
> *To:* Tarleton L. Gillespie
> *Cc:* List Aoir
> *Subject:* Re: [Air-L] Literature on Facebook groups on DTC genetic tests
>
> Thank very much for your answer.
> Yes, I know their work and had the chance to meet the authors of the two
> studies you mentioned at the Institute for Society and Genetics at UCLA.
> Besides those very interesting works, I have found very little research
> focused on these Facebook groups.
> More specifically, I am looking for:
> - more studies on online identity construction through the sharing of
> genetic tests' results
> - existing data about the extent of the phenomenon of sharing and
> discussing the results of genetic tests online (how many groups/users,
> etc.). For instance what is the ratio of the number of individuals who have
> taken the test and those who then shared it on social media?
>
> Thank you!
> Best regards,
> Serena
>
>
>
>
>
>
>
> On Mon, Mar 18, 2019 at 4:07 PM Tarleton L. Gillespie <tlg28 at cornell.edu>
> wrote:
>
> > Hopefully you know Joan Donovan's work?
> > https://osf.io/preprints/socarxiv/7f9bc/
> >
> https://scholarspace.manoa.hawaii.edu/bitstream/10125/50105/1/paper0218.pdf
> >
> >
> > On 3/18/19, 4:26 AM, "Air-L on behalf of Serena Ciranna" <
> > air-l-bounces at listserv.aoir.org on behalf of serenaciranna at gmail.com>
> > wrote:
> >
> >     Hi everyone,
> >
> >     I am studying the case of the sharing of of DTC genetic tests'
> results
> >     (from 23andme, Ancestry.com etc.)online, in particular on dedicated
> >     Facebook groups (such as  "Ancestry DNA matching
> >     <https://www.facebook.com/groups/407494112747727/> or others).
> >
> >     Do you have any recommendations of relevant literature, theoretical
> and
> >     empirical research on these Facebook groups or, more broadly on the
> > topic
> >     of sharing genetic tests' results on social media?
> >
> >     Your suggestions will be much appreciated !
> >
> >     Best regards,
> >     Serena
> >
> >     --
> >
> >     Serena Ciranna
> >
> >     PhD student, Institut Jean-Nicod, EHESS, Paris
> >
> >     Visiting researcher at EPIDAPO, Institute for Society and Genetics,
> > UCLA
> >     _______________________________________________
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> >
> >
> >
>
> --
>
> Serena Ciranna
>
> PhD student, Institut Jean-Nicod, EHESS, Paris
>
> Visiting researcher at EPIDAPO, Institute for Society and Genetics, UCLA
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-- 

Serena Ciranna

PhD student, Institut Jean-Nicod, EHESS, Paris

Visiting researcher at EPIDAPO, Institute for Society and Genetics, UCLA